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Tag Archives: congenital heart defects with Down syndrome
Nothing to Fear: Human Rights for People with Down Syndrome
Sarah and I were in Pittsburgh for Quilt Market where we stayed at the downtown Westin. When the elevator stopped on our floor there was a man dressed in business attire already on it. I looked over at him and … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged accurate information given with Down syndrome diagnosis, Annie Golden Heart, congenital heart defects with Down syndrome, Down Syndrome Diagnosis Network, Fear of Down syndrome, Fiona's Hope Totes, genocide of people with Down syndrome, La Pieta, medically fragile children with Down syndrome, more alike than different, National Down Syndrome Adoption Network, National Down Syndrome Congress, National Down Syndrome Society, T21 Ryder's Foundation, The National Center for Prenatal and Postnatal Down syndrome Resources
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Part 1: A Painful Week in the Down Syndrome Community
Real Community, Virtually When Lyra was four months old, I met a woman at a meeting for new parents of children with Down syndrome. A few weeks later, she sent me an invitation to join a Facebook group titled “(’12/’13) … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged Annie Golden Heart, Civil rights for people with Down syndrome, congenital heart defects with Down syndrome, disability bias in organ transplants, Fiona's Hope Totes, National Down Syndrome Congress, Sandra Jensen, The support of a Facebook group
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