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Tag Archives: Physical therapy for children with Down syndrome
Busting the Myths on Down Syndrome
This column was published on Ohio.com on May 6, 2017. One column only scratches the surface on the topic of life with Down syndrome in the United States in 2017. For more articles, videos and profiles of adults with Down … Continue reading
Posted in Uncategorized
Tagged Adults with Down syndrome, Brian Skotko research on happiness in people with Down syndrome, Busting myths on Down syndrome, Giving the facts about Down syndrome, Medical professionals need to know the facts of Down syndrome, National Down Syndrome Congress, Physical therapy for children with Down syndrome, Richard Dawkins and Down syndrome, Ruby's Rainbow, subtle discrimination of the developmentally disabled
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Seen as Sick: Conjuring Illness to Deny Full Humanity
“Is there a vagina?” I asked the midwife. After a summer of crop-killing drought, rain fell the day my last child was born. For the first time in two months, we turned off the air conditioning, opened our windows and … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged Brian Skotko research on happiness in people with Down syndrome, Civil rights for people with Down syndrome, Down syndrome is not an illness, Physical therapy for children with Down syndrome, rh blood factor, Richard Dawkins and Down syndrome, scientific studies on Down syndrome, subtle discrimination of the developmentally disabled, What to expect when your child is diagnosed with Down syndrome
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Two Years This Daughter
The first two years with a baby with Down syndrome are a lot of work, but then it all gets easier. I have repeated that sentence, spoken by the caseworker from our county’s DD Board when Lyra was only … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged early interventions for children with Down syndrome, large families, more alike than different, National Down Syndrome Congress Convention, Physical therapy for children with Down syndrome, Social media support groups, Talk Tools, Toddlers with Down syndrome
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Lyra’s Latest: In Need of the Next Map
Our home has been temporarily rearranged. The water bowl for the dogs and cats is now commonly found on the kitchen counter while the bathroom trash cans currently reside atop the closed lids of the toilets. A paper grocery bag containing paper recycling … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged bear crawling, Brian Skotko research on happiness in people with Down syndrome, Hip Helpers, Infant Block of therapies at Akron Children's Hospital, legally blind baby with Down syndrome, more alike than different, pediatric blood draws, pediatric ophthalmology, Physical therapy for children with Down syndrome, Rob Snow, Stand Up for Downs, when therapists disagree
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Comparing Lyra
Historically, I have not been a parent who has put much emphasis upon babyhood milestones. I was not concerned with the boys’ height and weigh percentiles. They held their heads up soon after birth, rolled over by three months, sat … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged 2013 National Down Syndrome Congress converntion, babyhood milestones, beauty, Down syndrome, Hip Helpers for children with Down syndrome, hypotonia in children with Down syndrome, occupational therapy for children with Down syndrome, Outcome based education, Physical therapy for children with Down syndrome, Responsive teaching, speech therapy for babies with Down syndrome, Talk Tools Honey Bear Cup, trusting maternal instincts, Waldorf education
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Lyra: Our First Year Together
Lifespans in Life The majority of the Down syndrome blogs are written by families whose child diagnosed with Ds is under the age of three. In an online group I belong to, mothers openly wonder why this is the case … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged 2013 National Down Syndrome Congress converntion, babies with contact lenses, baby constipation, congenital cataracts, Down syndrome, Fruit-Eze, home birth, large families, lensectomies, natural remedy for baby constipation, Physical therapy for children with Down syndrome, small baby, strabismus
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Lyra’s Latest: Fully Human & Needing a Civil Rights Movement
Your daughter was born with Down syndrome. Do not expect her to read, write, do math or ever drive a car. A physician said these words to the parents of a buoyant baby girl, aptly named Grace, in the days … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged 2013 National Down Syndrome Congress converntion, Adam's Camp, Adults with Down syndrome, Brian Skotko research on happiness in people with Down syndrome, Civil rights for people with Down syndrome, Down syndrome, justice for Ethan Sayer, Linda Crnic Institute for Down Syndrome Research, multiple intelligences, Physical therapy for children with Down syndrome, pronated feet, Ruby's Rainbow, speech therapy, Turning off the 21st chromosome
13 Comments
Lyra’s Latest: Baby Doll to Baby
She Awakens “What’s the word you just used?” I asked Lyra’s ophthalmologist. “Myelinate. It’s a coating over the nerves, just like that wire down there,” he said pointing to the floor where a thick cable traveled a short distance from … Continue reading
Posted in Lyra's Latests, Uncategorized
Tagged astrological reading while pregnant, baby constipation, crossed eye surgery, Down syndrome, homeopathic remedy for constipation, hypothyroidism in children with Down syndrome, learning to crawl with Down syndrome, Max Ehrmann, myelination with Down syndrome, Physical therapy for children with Down syndrome, posting quotes
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Changing Expectations: Lyra’s Latest
“I recently read that all people with Down syndrome develop Alzheimer’s in their forties or fifties, is that true?” I asked the pediatric geneticist as she examined our two-day-old baby. A few months earlier, I had read a Newsweek cover … Continue reading
