Down syndrome · Education · Lyra's Latests · Parenting & Family · Uncategorized

Daughter’s last year of camp marks the end of an era

For the past 33 years, my five children and I have spent time each summer in Charlevoix, Michigan, 50 miles south of the Mackinac Bridge. For many years, I left my first three kids, all close in age, with their grandparents, who stored bikes, fishing gear, boogie boards, basketballs and more for the handful of weeks they had the kids. The boys spent their days at Lake Michigan, just half a block from the grandparents’ house, or exploring the town on bike and foot. They checked in as needed, mostly at mealtimes.

As there is a nine-year gap between my third and fourth children, the grandparents were much older when my last two kids’ were big enough for summer visits. Their grandma suggested we enroll them at Camp McSauba, a city-run day camp on a ski hill next to Lake Michigan, so I could stay up north and work remotely. Because Grandpa had been a city employee, the fee was just $85 a week in 2015, the first year my son Leif attended.

Close relationships develop among camp counselors and children who return every year. Several Camp McSauba counselors were recent high school graduates when Leif and Lyra first attended and I have enjoyed watching these young adults grow and mature alongside my children. One wrote a college paper in which she described how integrating Lyra, who has Down syndrome, at a “typical” day camp benefits everyone.

Enrollment for camp is weekly, and children are placed in groups by age. The groups have an assigned counselor (or two, depending upon enrollment numbers) and several often requested Lyra’s group, including sisters Caroline and Ali Jarema. This summer was the first neither of the sisters were counselors because Caroline is now a pediatric occupational therapist and Ali a special ed teacher, both at the local school district where they taught summer school this year. They came to camp after work one day specifically to visit with Lyra.

The counselors always fully accepted and integrated Lyra at Camp McSauba. But the first year she attended, that was not true of the director, a woman around my age. No more than 15 minutes after I had dropped off Leif and Lyra on the first day, the director called me. She said Lyra had gotten her socks wet and needed a dry pair and also, “We are not set up for her to be here.”

I returned to camp with a fresh pair of socks and a (polite) piece of my mind. Lyra had spent the previous two years in Akron Public Schools Early Learning Program preschool and was comfortable in group settings. Yet all that director could see was Lyra’s Down syndrome, not a child behaving just like all the other 5-year-old campers. Lyra remained at camp that week, but the director demonstrably never warmed to her, which I found unnerving. I sent Leif alone the following weeks.

On a spring day when Lyra was perhaps 7, I stood in my kitchen in Akron and watched her struggling to carry a heavy laundry basket filled with dolls.

Lyra between camp directors Kirsten Peck and Meredith Walker.

“Where are you taking your babies?” I asked when she reached the back door.

“To Camp McSauba,” she told me before dragging the basket outside. I promptly shared this in a text message with Meredith Walker, the camp director since Lyra’s second year. Her heart melted like mine. Meredith was just 21 when she became camp director in 2019. Since then, she has graduated from college, become a fourth grade teacher, gotten married and, last year, gave birth to her first child.

Camp McSauba welcomes children ages 5 through 13. Three summers ago, Leif openly cried on his final day, as did several of the counselors. This year, the last day of camp was also Lyra’s 14th birthday. At lunchtime, I arrived with the largest sheet cake I’ve ever purchased, enough for 70 campers and several counselors. Everyone sang happy birthday to Lyra and, at the end of the day, a graduation ceremony was held for those, including my girl, who will be too old to return next year.

There’s a poignancy like none other when children do things you always wanted them to do, like graduate high school, leave for college or career, choose a life partner, become parents themselves. As my last child, Lyra’s graduation from summer camp marks the end of an era. From time to time we’ll return to Charlevoix as we have many dear friends there. But next summer, instead of picking which weeks to attend camp, we’ll ask, “Where do we want to go this year?”

This column was first published in the Akron Beacon Journal on Sunday, August 23, 2026.

Uncategorized

(Over the River and through the Woods to Grandmother’s House We Go) x 2.

Reduce, Reuse, Recycle.

We blew the first rule of green living. We try to live simply, but with seven people in this family,  it’s not so simple. Our new Toyota Sienna, purchased when the cost of fixing the old Sienna was greater than its value by a couple thousand dollars, can theoretically transport eight passengers, all seat-belted.

Figure two adults in the front seats. As my two oldest sons are now 6’2” and 6’ tall, four of us fit the physical description of “adult.”

The two captain’s seats in the second row are each dedicated to a car seat—one for two-year-old Leif and the other for this year’s newest member, Lyra. The middle seat in the second row, which is almost as narrow as a coach seat on a commercial airlines, had to be removed in order to access the back row of seats.

The back row, with the least amount of leg room possible as the middle seats have to be pushed all the way back to accommodate the toddler and infant car seats, might work if we had children under ten years of age, but note the heights mentioned above. Also, in this family, our height is all leg. Hugo and I have 32” inseams, Claude’s is 34”.

Lily & Hoover, ready to roll

In the very back, where the families in the Sienna ads store their luggage, we have a folded down stroller, which we very much will use, and two Shelties. Those are dogs that look like little collies and luckily like lying together in close quarters.

Where to put the turkey? The small suitcases of clothing? The diapers? The boys’ backpacks? My laptop? So much for simple living.

We departed  in two vehicles on two different days.

I left yesterday in the Sienna with Jules and the babies, the dogs, the turkey and all that these beings needed. Max is leaving shortly in his Camry with Hugo and will grab Claude in Ann Arbor on his way up north to Grandma’s house in Charlevoix. Until the kids drive on their own to Grandma’s, I don’t see how we will be able to do it any differently.

We are a modern family.

Grandma is my stepmom. Grandpa is her husband but not my dad. My dad and stepmom, who married when I was three, divorced in the early 90s after Dad had moved to Arizona in 1990. My stepmom never joined him in Arizona and he never returned to Michigan. Fulfilling the cliché that is life, Dad met another woman with children of her own and eventually seemed to forget about us. My stepmom never did and she has been the primary grandparent of my boys’ lives until I met Max through whom they have gained a second set of grandparents. Even before Max and I began producing blonde babies of our own, Max’s mom claimed my three boys as full members, with all privileges, of her grand-brood.

Every time I’ve had a baby, my stepmom was soon there to take care of us for as long as she could stay. As soon as they were old enough, my boys began spending many weeks each summer with Grandma and Grandpa in northern Michigan,  their house just a block from sandy Michigan Beach on Lake Michigan. And we come up every other Thanksgiving for Grandma’s holiday dinner. Her herbed rolls, made from scratch and cooked in loads of butter, are worth every gram of fat. I’ve never mastered her herb rolls and I’ve told Jules, who began baking breads this fall, to pay close attention tomorrow.

For years I have supplied the turkey, fresh-killed on the farm for which I host a co-op, which makes me sound like one of those über-mom-bloggers, but the way I host it is pretty lazy. All I do is reveal to the people in the co-op the code to my garage where I keep a refrigerator for the weekly deliveries. The members take turns (in alphabetical order) driving each Saturday to pick up the orders and bring them to the fridge in my garage. As a result, my food is delivered to my home every week.

This year’s turkey was executed and sealed in a plastic bag on Monday and delivered to my garage fridge that evening. I popped him in the Playmate cooler before we left yesterday and later today I will brine the bird in the same cooler. Playmates are the perfect size for brining a turkey and with a fresh-killed bird brining is, in my opinion, necessary.

When you buy your meat straight from the farmer who raised it, you inevitably learn a thing or two that you won’t pick up with your frozen Butterball. For example, meat must age in order to be edibly tender. We’ve all heard of aged beef, right? What that means is not some secret preparation, like the Kobe beef cattle who get massaged in life. Aging means a little decomposition. My fresh Tom hasn’t aged, but the brining will meet the requirements by helping break down his tougher connective tissues. Meanwhile, because he’s never been frozen, he’s not full of water. Nor chemicals or drugs because he’s also organic.

Grandma & Lyra

Which I guess gets to my point—know what is real and what really is. Your meat was an animal with a body who enjoyed being alive but I enjoy eating meat more than letting some animals continue to enjoy life. I don’t eat animals from factory farms when I can help it. Factory farm animals didn’t enjoy life as much as my organic turkey, though I’m sure they didn’t want to die for someone’s meal. I am thankful for our food, the people who grew it and the creatures who died so we could eat them. If it sounds ecumenical, it should.

That your blood relatives are genetically related is real. But real family are the people who show up, regardless of what you call them—mom, friend, brother, neighbor. Some of us are lucky to find family in our relatives. Some of us have to look beyond genetics to find our families. And my boys and I know the difference. We are all eager to get over the river and through the woods to my stepmom’s, and their very real grandma’s, house whenever we can.

When we arrived at 11:30 last night, there was a pot of split pea & ham soup waiting for us on the stove and bread baking in the oven.